RESUMO
INTRODUCCIÓN: Cada vez más niños con enfermedades complejas logran sobrevivir requiriendo el paso de una atención pediátrica a una de adultos. Es fundamental contar con herramientas que permitan conocer el grado de preparación del paciente para este traslado. OBJETIVO: Crear un cuestionario local para medir el estado de preparación para la transición de adolescentes con enfermedad crónica y someterlo a pruebas de validación. PACIENTES Y MÉTODO: Basado en cuestionarios internacionales se diseñó un instrumento de auto-reporte que se sometió a validez de contenido por expertos, y luego a pruebas de comprensión y factibilidad en grupo piloto. Posteriormente se realizó validación de constructo y fiabilidad utilizando análisis factorial tras ser aplicado en adolescentes con enfermedad crónica. RESULTADOS: Tras el análisis por 11 expertos y piloto de 8 pacientes se obtuvo un instrumento que fue respondido en forma completa por 168 adolescentes. Edad promedio 14,4 años. Tras la validación de constructo se genera un instrumento de 24 ítems de alta relevancia clínica, con 9 ítems con resultados psicométricos aceptables, los que se destacan en el cuestionario final. CONCLUSIÓN: Se presenta un cuestionario de auto-reporte para medir el estado de preparación de los adolescentes para la transición a servicios de adultos. Las propiedades psicométricas del instrumento resultaron insuficientes para su validación, ya que sólo se comprueba la validez de constructo y confiabilidad para 9 de los 24 ítems.
INTRODUCTION: In the last decades more and more children survive with complex health conditions, requiring a transition from pediatric to adult care. It is essential to have instruments that provide information on the level of preparation of patients for this process. OBJECTIVE: To create and validate a questionnaire to measure the readiness status of adolescent patients with chronic diseases in the transition process. PATIENTS AND METHOD: Based on international questionnaires, a self-report instrument was designed which was subjected to content validity by experts, and then to comprehension and feasibility tests in a pilot group. Subsequently, construct and reliability validation were performed through a factorial analysis after applied it to adolescents living with a chronic illness. RESULTS: After the analysis made by 11 experts and the pilot group with 8 patients, we obtained an instrument that was fully answered by 168 teenagers (Average age 14.4 years). After construct validation, a 24-items instrument of high clinical relevance was developed, with 9 items with acceptable psychometric properties, which were highlighted in the final questionnaire. CONCLUSION: a self-report instrument aimed to measure the readiness of adolescents during the transition process to adult care is presented. The reported psycho metric properties of the instrument were insufficient to consider it validated since the construct vali dity and reliability were only checked for 9 of the 24 items.
Assuntos
Humanos , Masculino , Feminino , Criança , Adolescente , Adulto Jovem , Testes Psicológicos , Doença Crônica/terapia , Autorrelato , Transição para Assistência do Adulto , Psicometria , Projetos Piloto , Estudos de Viabilidade , Doença Crônica/psicologia , Reprodutibilidade dos TestesRESUMO
INTRODUCTION: In the last decades more and more children survive with complex health conditions, requiring a transition from pediatric to adult care. It is essential to have instruments that provide information on the level of preparation of patients for this process. OBJECTIVE: To create and validate a questionnaire to measure the readiness status of adolescent patients with chronic diseases in the transition process. PATIENTS AND METHOD: Based on international questionnaires, a self-report instrument was designed which was subjected to content validity by experts, and then to comprehension and feasibility tests in a pilot group. Subsequently, construct and reliability validation were performed through a factorial analysis after applied it to adolescents living with a chronic illness. RESULTS: After the analysis made by 11 experts and the pilot group with 8 patients, we obtained an instrument that was fully answered by 168 teenagers (Average age 14.4 years). After construct validation, a 24-items instrument of high clinical relevance was developed, with 9 items with acceptable psychometric properties, which were highlighted in the final questionnaire. CONCLUSION: a self-report instrument aimed to measure the readiness of adolescents during the transition process to adult care is presented. The reported psycho metric properties of the instrument were insufficient to consider it validated since the construct vali dity and reliability were only checked for 9 of the 24 items.
Assuntos
Doença Crônica/terapia , Testes Psicológicos , Autorrelato , Transição para Assistência do Adulto , Adolescente , Criança , Doença Crônica/psicologia , Estudos de Viabilidade , Feminino , Humanos , Masculino , Projetos Piloto , Psicometria , Reprodutibilidade dos Testes , Adulto JovemRESUMO
La sexualidad es una faceta de la identidad y el desarrollo sexual saludable es un objetivo importante de la adolescencia. Las decisiones que están asociadas al desarrollo sexual adolescente, tienen a menudo importantes implicancias para la salud y la educación, así como para las relaciones actuales y futuras. La mayoría de los jóvenes inicia su vida sexual en la adolescencia, logra evitar embarazos no deseados e infecciones de transmisión sexual y desarrolla relaciones saludables respetuosas y comprometidas. Sin embargo, comparados a otros grupos de edad, los adolescentes tienen tasas desproporcionadamente altas de morbilidades derivadas de la conducta, incluyendo infecciones de transmisión sexual y embarazos no deseados. Los jóvenes que no adscriben a las normas socioculturales de expresión sexual y de género, tienen riesgos adicionales para su salud física, emocional y social. Los clínicos que atienden adolescentes necesitan saber sobre el desarrollo general y psicosexual del adolescente, las tendencias que rodean sus conductas sexuales, los beneficios y riesgos que acompañan a estas conductas y los recursos y las intervenciones que están disponibles. La información que ofrezcan debe ser precisa, completa y libre de prejuicios, para que puedan tomar decisiones saludables y seguras.
Sexuality is an aspect of identity, and healthy sexual development is an important goal of adolescence. Decisions that are associated with adolescent sexual development often have important implications for health and education, as well as for current and future relationships. Most young people initiate sexual activity in adolescence, prevent unwanted pregnancies and sexually transmitted infections and develop respectful and healthy relationships. However, compared to other age groups, teens have disproportionately high rates of morbidity resulting from behavior, including sexually transmitted infections and unwanted pregnancies. Youth who do not ascribe to the cultural norms of sexual expression and gender have additional risks to their physical, emotional and social health. Clinicians need to know about adolescent general and psychosexual development, trends surrounding their sexual behaviors, benefits and risks associated with these behaviors, and resources and interventions that are available. The information they provide must be accurate, complete, and unbiased, so teens can make healthy and safe decisions.
Assuntos
Humanos , Adolescente , Comportamento Sexual/fisiologia , Comportamento do Adolescente/fisiologia , Sexualidade/fisiologia , Minorias Sexuais e de Gênero , Chile/epidemiologia , Cuidados Médicos/métodos , Desenvolvimento do Adolescente , Grupos MinoritáriosRESUMO
In Argentina, cases of malignant catarrhal fever (MCF) are suspected to have occurred according to macro and microscopic lesions. However, none has been corroborated by molecular tests. We describe here the first laboratory confirmed case of MCF in Argentina occurring in American bison confined in the Buenos Aires Zoo.(AU)
Assuntos
Animais , Bovinos/microbiologia , Febre Catarral Maligna/diagnóstico , Argentina , Patologia Molecular , Animais de ZoológicoRESUMO
In Argentina, cases of malignant catarrhal fever (MCF) are suspected to have occurred according to macro and microscopic lesions. However, none has been corroborated by molecular tests. We describe here the first laboratory confirmed case of MCF in Argentina occurring in American bison confined in the Buenos Aires Zoo.