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1.
Rehabil. integral (Impr.) ; 14(1): 22-29, jul. 2019. ilus, tab
Artigo em Espanhol | LILACS | ID: biblio-1015955

RESUMO

Introducción: El dolor es una patología discapacitante, que en niños está siendo abordada en los últimos tiempos, siendo el dolor fantasma en amputados congénitos una complicación impensada hace algunos años, considerando teorías que describían que carecían de la madurez biológica suficiente para experimentarlo. Actualmente, existe literatura que reconoce una prevalencia de dolor fantasma de 3,7 a 20% en la población de amputados congénitos. Objetivo general: Evaluar población de amputados congénitos del Instituto Teletón Santiago para determinar incidencia, prevalencia lápsica y características clínicas del dolor fantasma. Pacientes y Métodos: Estudio descriptivo de prevalencia, con revisión de ficha clínica para registro de variables demográficas y clínicas, y aplicación de encuesta telefónica al total de pacientes que asintieran y contaran con el consentimiento de sus padres. Se incluyó a todos los pacientes de 10 o más años; se excluyó a los con hipoacusia asociada o con imposibilidad administrativa para contactarlos. Resultados: 57 pacientes, edad promedio 18,6 años, 59,6% con deficiencia longitudinal. Ningún paciente presentó dolor fantasma en el último mes en la población estudiada. La prevalecia lápsica fue de 7,0%. Un 24,6% refirió además presentar sensación fantasma alguna vez en su vida y un 5,3% haber presentado dolor en el último año. Conclusión: Existe dolor fantasma en la población de pacientes amputados congénitos en los rangos de prevalencia encontrados en la literatura internacional contribuyendo a la evidencia existente. Este es el primer estudio en nuestro país que evalúa dolor en deficiencias congénitas y constituye una línea de base para estudios adicionales.


Introduction: Pain is a crippling pathology, which has been addressed in children only in recent times, and phantom pain in congenital amputees was a complication unthought to exist some years ago, considering theories that described that they lacked biological maturity enough to experience it. Currently, there is literature that recognizes a prevalence of phantom pain of 3.7 to 20% in congenital amputees. Overall objective: To evaluate the in vivo amputee population of Instituto Teletón Santiago, to determine incidence, lapses prevalence and clinical characteristics of phantom pain in these patients. Patients and Methods: A prevalence descriptive study was carried out, with a review of the clinical files to register demographic and clinical variables and application of a telephone survey to the total number of Instituto Teletón Santiago patients who agreed to participate and had the consent of their parents. We included all patients aged 10 years and over; excluding those with associated hearing loss, or inability to contact for administrative reasons. Results: 57 patients, mean age 18,6 years, 59,6% with longitudinal deficiency. No patient refered phantom pain during de last month in the study population. The lapsic prevalence was 7,0%. 24,6% of the population studied reported phantom feeling at som time in their lives and 5,3% had phantom pain during the last year. Conclusion: There is phantom pain in the population of congenital amputees in the prevalence ranges found in the international literature contributing to the existing evidence. This is the first study in our country that evaluates pain in congenital deficiencies and constitutes a baseline for additional studies.


Assuntos
Humanos , Masculino , Feminino , Criança , Adolescente , Adulto , Adulto Jovem , Membro Fantasma/epidemiologia , Membro Fantasma/etiologia , Membro Fantasma/terapia , Membros Artificiais , Prevalência , Inquéritos e Questionários , Deformidades Congênitas dos Membros/diagnóstico , Amputação Cirúrgica
2.
Rev Chil Pediatr ; 86(3): 161-7, 2015.
Artigo em Espanhol | MEDLINE | ID: mdl-26363856

RESUMO

UNLABELLED: The Institutos Teletón care for 85% of the Chilean child population with neuromusculoskeletal disability, the large percentage concentrating in this population. However, there are no registers that enable a profile to be determined on this population. OBJECTIVE: To determine the profile of patients attending the Instituto Teletón de Santiago during the year 2012. PATIENTS AND METHOD: The sociodemographic characteristics were analyzed from the computerised records of the Instituto Teletón de Santiago on active patients who were seen during the year 2012. RESULTS: A total of 8,959 patients were seen during the study year in the Instituto Teletón de Santiago. As regards socioeconomic level, 33.3% were in extreme poverty, 28.7% to low-middle level. The main clinical diagnoses were cerebral palsy and other encephalopathies that also lead to motor disability, and accounted for 55.4% of the cases. CONCLUSIONS: As a result of determining this profile, it would be appropriate to encourage the need for a national register of the child population with disability, as well as their particular characteristics in order to make decisions on public policy, as a destination for funds or support programs.


Assuntos
Encefalopatias/terapia , Paralisia Cerebral/terapia , Pessoas com Deficiência/reabilitação , Doenças Neuromusculares/terapia , Adolescente , Encefalopatias/epidemiologia , Encefalopatias/fisiopatologia , Paralisia Cerebral/epidemiologia , Criança , Pré-Escolar , Chile , Feminino , Humanos , Lactente , Masculino , Doenças Neuromusculares/epidemiologia , Doenças Neuromusculares/fisiopatologia , Pobreza , Estudos Retrospectivos , Fatores Socioeconômicos , Adulto Jovem
3.
Rehabil. integral (Impr.) ; 10(1): 8-16, jul. 2015. tab, ilus
Artigo em Espanhol | LILACS | ID: lil-774861

RESUMO

Introducción: El dolor fantasma es una condición frecuente en pacientes amputados lo que genera discapacidad importante. En población adulta se estima una prevalencia entre 49-82 por ciento. Existe escasa evidencia de la incidencia y prevalencia en población de niños y adolescentes. Objetivos: Estimar la incidencia y la prevalencia del dolor fantasma en la población de amputados adquiridos del Instituto Teletón (IT) de Santiago de 10 años y más; caracterizar a esta población y asociar distintos factores clínicos y demográficos con la presencia de este dolor. Pacientes y Métodos: Estudio descriptivo de incidencia y prevalencia basado en la revisión de fichas clínicas para la obtención de datos demográficos, clínicos y evaluación de registro de dolor fantasma. Se aplicó encuesta telefónica a pacientes de 10 años o más, con diagnóstico de una o más amputación/es adquirida/s, que se atiendan o hayan sido atendido en IT Santiago hasta el año 2013. Resultados: La incidencia de dolor fantasma en la población estudiada es de 11 por 100 personas/año y prevalencia de 62 por ciento. Se encontraron asociaciones estadísticamente significativas, entre la presencia de dolor fantasma y el tiempo transcurrido desde la amputación (a mayor tiempo transcurrido, menor dolor) y edad de la amputación (a mayor edad en que se realizó la amputación mayor dolor). Conclusión: El dolor fantasma es un fenómeno frecuente en pacientes amputados adquiridos de 10 años y más atendidos en el IT de Santiago con una prevalencia del 62 por ciento.


Introduction: Phantom pain is a common condition in amputated patients generating significant disability. Prevalence among adult population is estimated at 49-82 percent. There is little evidence of the incidence and prevalence in child and adolescent population. Objectives: To estimate the incidence and prevalence of phantom pain in amputees aged 10 years and older of the Telethon Institute of Santiago; characterize this population and associate different clinical and demographic factors with the presence of phantom pain. Patients and Methods: Study incidence and prevalence based on a review of medical records to obtain demographic and clinical data. In addition a telephone survey was made to patients 10 years or older diagnosed with one or more acquired amputations who are treated or have been treated at Telethon Institute of Santiago until 2013. Results: The incidence of phantom pain in the study population is 11 per 100 persons/year and prevalence is 62 percent. Statistically significant associations were found between the presence of phantom pain variables and time since amputation (the longer the time elapsed, less pain) and age of amputation (the older the age at which major amputation was performed more pain). Conclusion: Phantom pain is a common phenomenon in patients with acquired amputation aged 10 years and older treated at the Telethon Institute of Santiago prevalence being 62 percent.


Assuntos
Humanos , Masculino , Adolescente , Adulto , Feminino , Criança , Adulto Jovem , Amputação Traumática , Membro Fantasma/epidemiologia , Chile , Prevalência , Estudos Retrospectivos
4.
Rev. chil. pediatr ; 86(3): 161-167, jun. 2015. graf, tab
Artigo em Espanhol | LILACS | ID: lil-760109

RESUMO

Los Institutos Teletón atienden al 85% de la población infantil chilena con discapacidad neuro-músculo-esquelética, concentrando el mayor porcentaje de esta población. Sin embargo, no existen registros que permitan caracterizar esta población. Objetivo: Caracterizar la población de pacientes atendidos en el Instituto Teletón de Santiago durante el año 2012. Pacientes y método: Se analizaron las características sociodemográficas de los registros electrónicos del Instituto Teletón de Santiago de los pacientes activos que se atendieron durante el año 2012. Resultados: Durante el año 2012 se atendió un total de 8.959 pacientes en el Instituto Teletón de Santiago. En relación con el nivel socioeconómico, un 33,3% de estos correspondieron a extrema pobreza, y un 28,7% a nivel medio bajo. Con respecto a los diagnósticos clínicos principales se encontró que la parálisis cerebral y otras encefalopatías que también llevan a discapacidad motora concentran el 55,4% de los casos. Conclusiones: Como producto de esta caracterización, sería adecuado fomentar la necesidad de optimizar el registro nacional de la población infantil con discapacidad y sus características particulares, para así poder tomar decisiones de políticas públicas, como destinación de fondos o programas de apoyo.


The Institutos Teletón care for 85% of the Chilean child population with neuromusculoskeletal disability, the large percentage concentrating in this population. However, there are no registers that enable a profile to be determined on this population. Objective: To determine the profile of patients attending the Instituto Teletón de Santiago during the year 2012. Patients and method: The sociodemographic characteristics were analyzed from the computerised records of the Instituto Teletón de Santiago on active patients who were seen during the year 2012. Results: A total of 8,959 patients were seen during the study year in the Instituto Teletón de Santiago. As regards socioeconomic level, 33.3% were in extreme poverty, 28.7% to low-middle level. The main clinical diagnoses were cerebral palsy and other encephalopathies that also lead to motor disability, and accounted for 55.4% of the cases. Conclusions: As a result of determining this profile, it would be appropriate to encourage the need for a national register of the child population with disability, as well as their particular characteristics in order to make decisions on public policy, as a destination for funds or support programs.


Assuntos
Humanos , Masculino , Feminino , Lactente , Pré-Escolar , Criança , Adolescente , Adulto Jovem , Encefalopatias/terapia , Paralisia Cerebral/terapia , Pessoas com Deficiência/reabilitação , Doenças Neuromusculares/terapia , Pobreza , Fatores Socioeconômicos , Encefalopatias/fisiopatologia , Encefalopatias/epidemiologia , Paralisia Cerebral/epidemiologia , Chile , Estudos Retrospectivos , Doenças Neuromusculares/fisiopatologia , Doenças Neuromusculares/epidemiologia
5.
Rehabil. integral (Impr.) ; 8(1): 33-37, jul. 2013.
Artigo em Espanhol | LILACS | ID: lil-708064

RESUMO

Premature birth can be associated to multiple complications in the new born. The amputation of an extremity is one of them. Even though it is a rare complication, it can have severe consequences, because it can overlap with the more frequent complications observed in prematurity and obstruct the evolution of the patient. The major cause of amputation in a premature infant is thrombosis, which is produced by the complication of a vascular access. There is a lack of articles describing the evolution of these patients beyond the acute event. We present a case of a patient that had an amputation related to prematurity and we detail how his rehabilitation process has been so far.


El parto prematuro conlleva a múltiples complicaciones en el recién nacido. La amputación de una extremidad es una de ellas. A pesar de ser una complicación poco frecuente, puede tener consecuencias graves, pues se puede sumar a las complicaciones más comunes de la prematurez y dificultar la evolución del paciente. La principal causa de amputación en un prematuro es la trombosis por complicación de un acceso vascular. No existen artículos que describan la evolución de estos pacientes más allá del evento agudo. Presentamos el caso de un paciente que sufrió una amputación producto de la prematurez y detallamos lo que ha sido hasta ahora su proceso de rehabilitación.


Assuntos
Humanos , Masculino , Lactente , Amputados/reabilitação , Recém-Nascido Prematuro , Próteses e Implantes , Extremidade Inferior
7.
Rehabil. integral (Impr.) ; 7(1): 32-39, jul. 2012. tab
Artigo em Espanhol | LILACS | ID: lil-701701

RESUMO

Introduction: Telemedicine (TM) is the use of telecommunication to provide clinical care, while eliminating distance barriers between professionals and patients. Telerehabilitation (TR) is the use of TM in rehabilitation. Objective: To describe the level of satisfaction among professionals and patients who utilized the Rehabitic® Program, and to evaluate changes in clinical parameters and quality of exercise performance. Method: A descriptive case study, in which three patients aged from 10 to 18 years, with cerebral palsy type spastic hemiparesis (GMFCS type I or II), from Santiago’s Teletón Institute were selected. The Rehabitic ® Program was applied for 10 sessions during 40 minutes each. Pre and post measurements were taken for: muscular strength (MRC Scale); muscular tone (Ashworth’s Modified Scale); joint range of motion (Goniometer); quality of exercise performance (Video comparison with Rehabitic®); and satisfaction degree (Survey). Results: Patients and professionals expressed wide acceptance for the use of TR. Patients 1 and 2, showed changes in hip adduction strength, and patient 1 also showed changes in knee flexor and extensor’s tone. Quality of exercise performance varied in each case. Highest consistency on adequate exercise performance was achieved for 4 out of 10 sessions. Conclusion: Professionals and patients showed high acceptance of the use of Rehabitic® software in rehabilitation, as it is described in the scientific literature. However, this tool requires programmatic and technical adjustments to be implemented with children. Since it was a case study, no conclusions were drawn on clinical parameters.


Introducción: La telemedicina (TM) es el uso de las telecomunicaciones para acercar los servicios de salud a los pacientes cuando hay una distancia física entre el profesional y el paciente. La telerehabilitación (TR) es el uso de TM en los servicios de rehabilitación. Objetivo: Describir grado de satisfacción de profesionales y pacientes que utilizaron programa Rehabitic® , cambios en algunos parámetros clínicos y calidad de ejecución de los ejercicios. Metodología: Estudio descriptivo de casos, seleccionando 3 pacientes con parálisis cerebral tipo hemiparesia espástica, de 10 a 18 años, GMFCS tipo I o II del Instituto Teletón de Santiago. Se aplica programa Rehabitic® durante 10 sesiones de 40 min; se mide antes y después fuerza muscular (escala MRC), tono muscular (Escala Ashworth modificada) y rangos articulares con goniómetro, calidad de ejecución de los ejercicios comparando Rehabitic® con vídeo y, grado de satisfacción mediante encuesta. Resultados: Pacientes y profesionales expresaron alta aceptación en el uso de TR. Dos pacientes presentaron cambios en fuerza de abducción de cadera y uno en tono de extensores y flexores de rodilla. La calidad de ejecución fue variable para cada caso; la concordancia máxima de buena ejecución de los ejercicios fue de 4/10 sesiones. Conclusión: Profesionales y pacientes evidencian satisfacción con el uso del software Rehabitic® en el proceso de rehabilitación; no obstante, esta herramienta requiere de ajustes programáticos y técnicos para ser implementada en niños. No se puede concluir respecto de cambios en los parámetros clínicos por tratarse de un estudio de casos.


Assuntos
Humanos , Masculino , Adolescente , Feminino , Criança , Modalidades de Fisioterapia/métodos , Paralisia Cerebral/reabilitação , Telemedicina/métodos , Terapia por Exercício , Satisfação do Paciente , Paresia/reabilitação , Software , Inquéritos e Questionários , Interface Usuário-Computador
8.
Rev Med Chil ; 138(2): 243-50, 2010 Feb.
Artigo em Espanhol | MEDLINE | ID: mdl-20461315

RESUMO

One of the main objectives in the rehabilitation of people with disability is to give them the possibility of mobilizing independently and a car is a modern and effective tool for achieving this objective. It is essential to make a specific assessment that includes at least the visual, cognitive and motor area before deter-mining whether the individual can drive a car, or also what kind of adaptations may be required. It is also essential to properly know the Traffic Law in force in our country to be able to guide the steps that the patient has to follow to obtain a driver's license. The objective of this review is to study deeply this interesting subject and all the edges that have been mentioned above.


Assuntos
Condução de Veículo/legislação & jurisprudência , Avaliação da Deficiência , Pessoas com Deficiência/legislação & jurisprudência , Chile , Pessoas com Deficiência/reabilitação , Humanos
9.
Rev. méd. Chile ; 138(2): 243-250, feb. 2010. tab
Artigo em Espanhol | LILACS | ID: lil-546218

RESUMO

One of the main objectives in the rehabilitation of people with disability is to give them the possibility of mobilizing independently and a car is a modern and effective tool for achieving this objective. It is essential to make a specific assessment that includes at least the visual, cognitive and motor area before deter-mining whether the individual can drive a car, or also what kind of adaptations may be required. It is also essential to properly know the Traffic Law in force in our country to be able to guide the steps that the patient has to follow to obtain a driver's license. The objective of this review is to study deeply this interesting subject and all the edges that have been mentioned above.


Assuntos
Humanos , Condução de Veículo/legislação & jurisprudência , Avaliação da Deficiência , Pessoas com Deficiência/legislação & jurisprudência , Chile , Pessoas com Deficiência/reabilitação
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