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Training of community health agents - a strategy for earlier recognition of mucopolysaccharidoses.
Pedrini, Diane Bressan; da Silva, Larissa Pozzebon; Vieira, Taiane Alves; Giugliani, Roberto.
Afiliação
  • Pedrini DB; Medical Genetics Service Department, Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.
  • da Silva LP; Post-Graduate Program in Child and Adolescent Health, Federal University of Rio Grande Do Sul, Porto Alegre, Brazil.
  • Vieira TA; Brazilian Research Group On Rare Diseases (DR Brasil), Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.
  • Giugliani R; Casa Dos Raros, Porto Alegre, Brazil.
J Community Genet ; 15(2): 129-135, 2024 Apr.
Article em En | MEDLINE | ID: mdl-38114745
ABSTRACT
Primary Health Care (PHC) is the gateway for patients in the Brazilian unified health system (Sistema Único de Saúde-SUS), playing an extremely important role in the identification of potential patients with genetic diseases, and referral to specialized and tertiary health services. The PHC is composed of a multidisciplinary team, including the Community Health Agent, who is in direct contact with the community. To implement an educational program aimed at community health agents working in several municipalities in the state of Rio Grande do Sul (RS), Brazil. The training was focused on genetic diseases in general, with a special focus on identifying patients with Mucopolysaccharidosis (MPS). Tests were applied before and after the educational intervention, in order to assess the participants' knowledge on the topic at these two moments. The study covered a total of ten training sessions carried out in eight municipalities in the RS state, training 374 community health agents. The number of correct answers in the pre-test (n = 339) was 8,4 (SD 1.2), while in the post-test (n = 361) it was 9,2 (SD 0.8). Statistical analysis showed that the educational intervention effectively provided information about genetic diseases to the participants. Considering that community health agents are of fundamental importance in the identification and prevention of diseases and in the better navigation of the patients on the SUS, these professionals play a key role in the field of rare genetic diseases, and continuous training strategies should be taken.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Community Genet Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Alemanha

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Idioma: En Revista: J Community Genet Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Brasil País de publicação: Alemanha