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Over 25 Years of Hope: Development of Lymphatic Filariasis Patient Support Groups in Haiti.
Beau De Rochars, Valery Madsen; Coreil, Jeannine; Désir, Martha; Mayard, Gladys; Michel, Marie Carmel; Milord, Marie Denise; Carpenter, Rand; Streit, Thomas G; Désir, Luccène; Noland, Gregory S; Addiss, David G.
Afiliação
  • Beau De Rochars VM; Department of Health Services Research, Management and Policy, College of Public Health and Health Professions, University of Florida, Gainesville, Florida.
  • Coreil J; Emerging Pathogens Institute, University of Florida, Gainesville, Florida.
  • Désir M; The Carter Center, Atlanta, Georgia.
  • Mayard G; Hôpital Sainte Croix, Leogane, Haiti.
  • Michel MC; Department of Community and Family Health, College of Public Health, University of South Florida, Tampa, Florida.
  • Milord MD; Hôpital Sainte Croix, Leogane, Haiti.
  • Carpenter R; Hôpital Sainte Croix, Leogane, Haiti.
  • Streit TG; Centre de Recherche et Service Social Humanitaire, Port-au-Prince, Haiti.
  • Désir L; Hôpital Sainte Croix, Leogane, Haiti.
  • Noland GS; Hôpital Sainte Croix, Leogane, Haiti.
  • Addiss DG; Mennonite Central Committee, Akron, Pennsylvania.
Am J Trop Med Hyg ; 111(3_Suppl): 89-92, 2024 Sep 03.
Article em En | MEDLINE | ID: mdl-38653215
ABSTRACT
Support groups can create environments that are conducive to healing and well-being, particularly for persons with stigmatizing chronic diseases. In 1998, the support group concept was adapted in Haiti for persons with disabling lymphedema caused by lymphatic filariasis (LF). The project was developed with the expectation that the support group model conceived in the developed world be interpreted and modified by persons affected with lymphedema in the Haitian setting. Initiated with modest financial support within a research initiative to eliminate LF, a total of 50 "Hope Clubs" were formed from 1998 to 2023 across seven communes (districts) located in 3 of Haiti's 10 regional Departments. Documented benefits of the support groups included improved limb self-care, decreased incidence of inflammatory episodes (adenolymphangitis), enhanced self-efficacy, economic benefit through microenterprise, and improved quality of life. Despite challenges of funding shortfalls, natural disasters, and political insecurity, persistence of LF support groups in Haiti highlights the crucial role of group ownership by affected persons and the freedom to reinvent the support group concept in light of local social, cultural, and economic conditions.
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Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Grupos de Autoajuda / Filariose Linfática Limite: Humans País/Região como assunto: Caribe / Haiti Idioma: En Revista: Am J Trop Med Hyg Ano de publicação: 2024 Tipo de documento: Article País de publicação: Estados Unidos
Texto completo
Adicionar na Minha BVS
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Coleções: 01-internacional Base de dados: MEDLINE Assunto principal: Grupos de Autoajuda / Filariose Linfática Limite: Humans País/Região como assunto: Caribe / Haiti Idioma: En Revista: Am J Trop Med Hyg Ano de publicação: 2024 Tipo de documento: Article País de publicação: Estados Unidos